Makena’s Hope Incorporated is a non-profit organization formed after the life of our daughter, Makena Jade.  Shortly after birth, Makena was diagnosed with Wolf-Hirschhorn Syndrome, an extremely rare chromosomal disorder of the 4th chromosome.

​Management of Wolf-Hirschhorn Syndrome differs for each individual, but generally includes life-long therapies, continuous medical monitoring for secondary complications and in some cases, special feeding techniques and management of gastrostomy difficulties.  During Makena’s time in the neonatal intensive care unit at Strong Memorial Hospital it was also suggested to us that we expose her to as much sensory training and activities as we could.

​Makena Jade passed away on November 13, 2015 from pneumonia while still in the NICU. We created Makena’s Hope Incorporated as a way to not only keep her memory alive, but to provide family services. The primary mission of Makena’s Hope is to enhance the lives of children and adults with developmental and intellectual disabilities by offering fun, creative and educational support services.

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Our mission is to support, enhance, inspire, foster creativity, and showcase the arts of youth by meeting their needs in our community.

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